The last few weeks have not been the best for me, but by far and away, the things that hurt the most are, if I'm honest, the way a few friends have reacted to my boundaries. And how, from there,
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Mental wellness
Depression
I’ve been on about three false starts for this post, this week. And I’ve tried to write and explain this feeling… this weight for years.
It’s odd. I’m a writer. I should be able to explain this. But I’m depressed. It’s a hard time to write in the first place, and then, to write about how sad I am… I guess it makes sense that it’s hard to deal with.
Depression just is
Believe it or not…this is one of the millions of faces of depression. And it’s mine. That’s me on Saturday, after The UK Games Expo. My daughter and I had *a ball*, but I went to bed Saturday with the post-con blues, and woke up with full blown, not done this for a while, “oh, I thought I’d seen you for the last time, oh well,” depression.
I have CPTSD, I’m somewhere on the autistic spectrum, I have anxiety and psychosis. Depression is a MAJOR part of my life, unfortunately, but, I’m not particularly gracious about it. Depression isn’t something we need to be gracious about, but… as a mental health advocate, I kinda feel like a fraud posting photos and smiley selfies when I feel like rubbish.
I do want to talk about that later – it’s important, and it’ll be linked from here when it goes live. But, I guess this is the other side of it. One of *many* sides, I feel. You won’t look at me and think ‘that’s a depressed woman’. Not unless you see me in what we call my ‘meltdown moments’. But just because I’m smiling, or interacting on social media, or Facebook, it doesn’t mean I’m ok. In fact, often, I find that’s when I know it’s coming. When I have to start forcing myself to open my laptop, I know things are getting hard. I know it’s really hard when I can’t find nice things to say to people when they need help. I know I have to step away when stupid incidents wind me up to spitting teeth, and I DO walk away when I’ve had a week like this, where I was bullied. It’s not overly common, but it does happen. Add all of it together – the post-con blues, bullying, sadness and inability to focus, and oncoming depression?
That’s kinda a perfect storm for me to get into real trouble if I don’t step away and let the darkness pass over me.
It’ll pass, but it’s not the blues
One of the conversations I’ve had when talking about writing about depression of any kind is that it just *is*. A friend that talked to me last night, when I mentioned I wanted to make this post but I was struggling with it, suggested that I should call it ‘I guess that’s why they call it the blues’. Other friends have talked to me about telling people about how I battle, how it’s a fight.
I can’t do that. It’s not that I don’t agree that people frame it their way. I just can’t frame it that way. Depression just is. It’s a part of my fabric, and there are, when I’m in less bad places, I guess, upsides to it. I understand exquisitely the depths of darkness and the heights of joy. I know it’ll pass. It always has in the past. It’s not easy to keep that in mind right this second, but, it does. I know it does.
Depression just isn’t….
It just isn’t something that goes away. As I’ve mentioned, I don’t really deal tell other people how to feel, but I’m not really comfortable with the stuff that comes with talking about depression. So, I’m going to say, if you’ve read this post, please remember three things:
- I’m currently *very depressed*. Be kind, because I’m not in a place where I’m very good at censoring myself.
- I don’t want to be ‘sold’ to. I meditate, I use essential oils, I read and write self-help books. I know all of the suggestions that I’m to follow. In the coming days, I’m going to start pulling back, start making space, start going back to basics. I’ll probably talk about that later, but less social media, more real life time basically sums it up. Eat properly, and go back to a rigid schedule till I feel more comfortable.
- Finally, if you don’t have anything nice to say, please don’t say it. No ridicule, no bullying and please, this is one of the few times I also ask that you don’t say ‘oh, I know how you feel’ and launch into why. Knowing others are depressed (which I *know*, believe me, I know) doesn’t help me. I will take advice without needing people to explain why they want to give it. But if you’re struggling right now, I’m sorry, I’m not the person to tell. It hurts more.
When I’ll be back
Usually I am gone for a week or two when this happens. Sometimes I pick myself up and get back into writing, or find something that I can be proud of, or things turn around. My mood is related – a lot – to what I do, what I succeed and how I spend my time. I’m hard on myself, as many people are. You don’t need to have depression to be tough on yourself.
But, living with depression when you feel like you’re failing…it’s so hard. Getting up and out of bed, cooking…eating. Even staying clean and brushing my hair…it’s all so many more spoons than it takes me to get to where I am just to sit down and do my work during the day. Work is…. daunting, terrifying, horrible. Even when I complete something, it’s *never enough*. Not for me. I’ve done some really amazing things for my clients, and I know I have because they’ve told me that I’ve done something amazing. (I moved someone from an Exchange server for Pete’s sake! It might not be a big thing, but I’m not Windows. I’m Linux. It’s a daunting thing to move 7+ years of archived emails. I discovered, as I researched that it’s not actually that difficult, it’s just…a bit…fiddly to get people swapped over for access if they’re not really technical, but we did it. People are happy. I’m even talking to people on the phone to do it.)
All of this is HUGE. I still feel terrible though. And a lot of this is my mindset. Some of it is worry that I’m doing stuff wrong, because I’m always learning new things. Some of it…I dunno. Some of it is just life. I feel like I’m not achieving much when I’m moving things around and reorganising my own stuff, which is what I’m doing now.
But…I’ll be back. I’m going to keep working on my books, if I can. I’m going to keep the business running. I’m going to try and do what I can to help others, when I’ve got spare spoons. But mostly. I’m just going to work on resetting things. My meditation practices have slipped. I’m not exercising as much. I’m not eating more than once a day, most days. And most of all, I’m not interested in going and messing with my Cricut. We’ve got a new resin printer here and I’m not asking to unpack that. All I really want to do is lie in bed and wait till this passes. (and yes, I know that’s stupid. That I can’t just wait it out. I’m not very good at looking after myself, but food is one of those things I just kinda view as ‘I need to do this’ when I’m in this mood. I’m lucky, my partner looks after me, as do my kids, but seriously, don’t pillowfort till you feel better).
Trying, failing, trying again
After my last post, Is it Though?, I’ve been trying to… plot and plan and think through what to do next.
I did mention that I punctuate the phrase ‘if at first you don’t succeed. Try. Try again’, and I got feedback from people asking what I meant by that. So. I thought I’d explain that.
And maybe show off some new stuff at the end of the post 馃槈
If at first you don’t succeed. Try. Try again
One of the things that my wonderful psych team (Dr C and MW, my psych nurse) who I was discharged from at the end of last month, worked on with me, was my mindset. And this really does say everything about my mindset, in more ways than one.
It acknowledges, in part, that I’ll fall and get back up, over and over.
It acknowledges I don’t get it right first time.
But… unlike one of the comments (which turned into some serious nastiness, so was deleted) I had, it does not imply I’m setting myself up for failure. It does NOT imply that I expect to fail over and over. In fact, I’m often pleasantly surprised when I get it right faster than I expect, and I enjoy that.
It’s all about perspective
One of the essays in one of the new books announced this week, (Miles to go Before I Sleep, November 12th 2021) is called ‘it’s all about perspective.’ MtgbIs will be discussed in great depth later in the year, I guess, as an ongoing thing, but the perspective essay has a critical point in it.
“It’s really easy to say ‘I feel positive’ and be lying in some ways. Mental health isn’t binary. You can say ‘I feel positive’ and it really mean ‘but I’m still ready for it to go wrong’. It’s not a betrayal of positivity. It’s practicality. It’s just remembering that on that see saw, you’re supposed to be closer to ‘positive’ than ‘ready to deal with’.”
And I think that’s what I try to explain to others. I am upbeat, positive and often, just chugging away. But I am also often prepped for things to need adaptation. I expect to fail, and have to keep trying.
And keep trying…
How about some good news now? I’ve got three books up on announcement for release right now. I’ve told my street team, and shared on my own personal profile, and we’re just getting my publisher blog sorted out, but…
And miles to go, Before I sleep
Kill Kit Killers – Book 1
And
A House at War – Book 1, House Arrath and With Benefits
Back to basics
I always kinda feel like I’m talking about bootcamp when I say that, but, when things start feeling less pleasant and I my mood is less stable, I start thinking about needing to get back to my ‘basics’ plan.
A history
Waaaaay back before I had to be discharged from the mental health team locally and was granted the right to see a therapist in the county opposite, one of the things they put me on was a DBT course. It was ostensably because they kept arguing I had EUPD, and EUPD is primarily treated with behaviour modification and management, not meds. But I don’t have EUPD. I have CPSTD. It does also respond well to DBT, but only parts of it, IMO.
One of the worst weeks I had in class, and when my partner and I realised that no, coming home crying after class wasn’t because I was making things better, I was getting worse was when there was a list in one of the chapters about everything you have to basically do in a day to keep yourself and your living space clean. It was under a heading of ‘mastery’. Everyone in the class started deriding the fact that this was in there, while I very quietly (at first) sat and withdrew into myself because I realised I wasn’t even doing the basics of self care (to be fair, the list included ‘moisturise yourself every day, paint your toenails if you’re a girl, trim your beard if you’re a guy’ and I got so wrapped up in it being an example, and the ensuing argument about it that I didn’t catch what I should have, which was ‘we make our own survival lists’. The hardest bit about missing that was also that I was called some really unrepeatable things by fellow class participants, who suggested ‘anyone that couldn’t do this was’ (insert name here, not pleasant, at least one of).
The basics list was born
After arguing, and realising I was arguing with people that didn’t understand, going home, crying, asking on Facebook, and privately feeding back to the tutors that I had found that horrible, and that it might be better reworded (they asked me to, I did my suggestions on paper, in private), I started thinking about what my list should look like. It became my back to basics list. And before you ask, yeah, that was the beginning of the end of me attending any group classes for therapy. I was lucky that the next team that got me understood and caught where there had been mistakes, or I might not be as philisophical, nor aware about it all. And yes, you DO encounter bullies in those groups. Sometimes it’s the people leading the group. The less said about *that*, for now, the better.
Whenever I feel things slipping, or I start feeling as horrible as I did because I’m missing things that ‘everyone should be able to do’, I stop, I clean up whatever I’m doing, and I do my basics list. It’s not actually all that involved.
The basics list
- Get up and make the bed.
- Brush hair and teeth
- Tell Alexa to ‘Start my day’ (tells me the time, the news, and loads Headspace so I can meditate for ten minutes, minimum). If still unsettled, pick a longer meditation, or watch ‘The Wake Up’ (again, Headspace app).
- 1 walk, outside if possible. Alone is great, invite someone if not.
- Make and eat lunch, even if it’s a tiny amount
- Write 500 words OR design one page
- If I’m feeling up to it, bake bread, or make something nice for others in the house.
- Answer client emails honestly
- Tell friends why you’re not around if asked.
- Read
- Laptop OFF by 9pm
- Bath if stiff, feel like you need a clean or are restless
- Bed with Tempus, if he’s home (10:30pm)
- No tech at night.
There are times some of it gets skipped, like if I don’t come downstairs. If I don’t, I can read and research and write upstairs so it’s not the end of the world, but I do try to come down as often as I can. There are days though when I’m so depressed that all I do is make the bed, meditate, and stay there.
Structure…mostly
I tell people that the reason it works is because I don’t do well with chaos and unstructured things, but honestly… it’s a checklist of things that are either ‘must do’ or ‘can do’ and if I don’t do the ‘can do’ ones, it’s ok. Not at the time, but one day I’ll learn to be gentle with myself all the time.
One of the biggest things it does stop though is being online constantly. Social media is a place where I can talk to my friends, but it’s also a place where I see things that make me unhappy. It’s hard to filter the world news, and the other things I’m trying not to see cause it doesn’t help. So, mostly, getting back to basics restricts my time online, which helps me at least work on stabilising my mood.
Is it though? Thoughts on #failure
If at first, you don’t succeed, try. Try again.
English Truism/clich茅
(sidenote, I always thought the punctuation on that saying was pretty fluid. It actually reads more like a poem when I write it, cause I’ve always put the commas and full stops in there. Weird that my version actually talks about failing at least twice too. I’ll get to that later)
Failure – a loaded word
The last few weeks have been really…weird for me. I *started* making strides on becoming happier, healthier and more confident in my skin by trying to go for a walk outside and enjoying myself. I say started – last Friday, due to the completely thoughtless actions of a company that I’ll still say ‘remains nameless’ but is a social media scheduling program, who increased my bills by an eyewatering 1151% a month, this week has been a week of disruption, sadness, and annoyance.
And it didn’t help that I was fixing a stupid video problem that very few people actually see (that’ll go on my other blog, probably this weekend. What I’m hearing myself say right ow is I have a lot of blogs to work on. It’s not a happy thought, if I’m honest), but is key to a few clients who work on those platforms. And of course, I worked my ass off to fix it. But still…it’s been a rough week, and that’s meant…no walks.
I told myself that if I ‘failed’ at any point, I’d be gentle with myself – accept that it’s a ‘fact of life’ as it were when recovering that you’ll backslide, but I have to be honest. Although that language applies to me, if you stumbled on my blog out of context, you wouldn’t know what I was discussing was in fact not alcohol or drug-induced issues, but, instead, recovery from a mental health breakdown. And if I’m entirely open about that, it was a full-on ‘breakdown’. I spent a month refusing to leave our bedroom. Five years of being unable to leave the house alone. A LOT that I still don’t like to talk about.
I’ve still not gotten back to a place where the house is neat and tidy and everything has a place. I don’t think I ever will. I keep trying to put my work back together, and every little thing that knocks me off track is so significant. So hard.
When the language is all about judgement, how do you not judge?
I’m discharged from the team in question on Tuesday (hooray, I’m better…hang on), but the very last psych I worked with before I wrote this post, who I refer to as Dr C, finally said, a few Januarys ago, that he believed that everyone was a little bit on ‘the spectrum’, and in my case, I was VERY language focussed. To the point that I’ll get upset with language usage because people don’t use words precisely. It’s a form of control of course, but my psych says that he’d finally come to a conclusion that it wasn’t a power play. He thought I wasn’t/don’t do it to push people, to control them, but instead, to understand my environment. My ‘my brain won’t let this go’ is constantly stimulated. It’s language. In all it’s forms, really.
What I do know though, about all of this, is that I’ve got a bias in how I perceive language. My language ‘understanding’ has an undertone of judgementalness. It’s how my brain works, and isn’t – really – about anything other than… I guess, when you grow up as badly bullied as I was, you need to find a reason for that. When you’re young, it’s most common to blame yourself. We think, unpicking everything, that my outlook is very much coloured by wanting to belong and not managing it because…children are children. I can’t blame the kids I grew up with (I can’t – many of them are in worse places than I ever ended up), and my family did their best. I just wasn’t… I’ll be blunt I guess. I grew up in an era where bullying was still viewed as character forming. Half of my teachers didn’t know what to do with me, and I must have been difficult for my family. I was sensitive, sad, often emotionally difficult, I guess. I began to prefer my own worlds to the ones outside. I didn’t interact well. If it happened now, as in, if I was a child/teen now, I suspect I’d have been put into a specialist education program, and I may – or may not – have turned out the way I am. And there I go again, judging myself.
So. This week has been not optimal. Not even minimal. It’s been rough and hard and tiring.
But… I’m learning a lot of things. Always growing. So.
I own this one. I didn’t do any exercise this week. I have good reason for it, I was disrupted, and upset and had a really ‘poor’ week. But, I’ve been able to think, plan, consider, when I’ve not been too preoccupied with reclaiming money that shouldn’t have been removed from my account. It’s been a frustrating week, but I DID get those video fixes sorted, I *am* working through stuff with clients to get on with. The week, on the surface, looks like a failure. But really?
It’s just been a week that hasn’t worked out.
If, at first, you don’t succeed. Try. Try again.
I don’t want to call it a ‘new normal’ but it’s a change….
I hate the phrase ‘new normal’. Much like the fact that I don’t like mental health being classified as ‘normal’ or ‘abnormal’. Quirky language bit of my brain aside, I think making judgements like that is something that makes it difficult to accept that we’re all a little…different. There’s no one way to be.
But… ‘new normal’ and ‘freedom day’…
In the UK, they’re referring to something that may be (it actually has been postponed) postponed, called ‘Freedom Day’. In the UK, the day we lifted lockdown was literally going to be referred to (by our rather off-piste PM, I have to say) as ‘Freedom Day’ and all it really represented was us finishing lockdown and seeing if we see a new spike.
Don’t get me wrong. Since March of last year, things have been really difficult for many reasons. But my life had been about lockdown before lockdown was a thing. I’ve not left the house on my own for…. well, up until last week, with a few very notable exceptions, I’ve not left the house alone since around 2015, I guess.
It was insidious at first. I’d stop wanting to go into town unless I had a reason. Part of it, of course, was because of the really bad fall and learning to walk again, but by that point, we had a treadmill in the house. But I guess that’s around when I stopped leaving the house. By the time we were treated to the holiday *of a lifetime* (and I’ll be real, I’ve actually had two since mid 2015 – one in 2016, one in 2018) to Disneyland by my in-laws and hubby-to-be, they were making arrangements with the staff to make sure I wasn’t startled during large events, and I wasn’t able to leave the house. I wasn’t really working outside of the house either – I tried a few times but it never really…took, I guess.
My terrible mental health got worse too because I didn’t mesh with my care team and a few things were missed. By the time the pandemic was in full flow, it had kinda…snuck past me because I was dealing with my son’s kidney issues, and though he’d been cleared the morning we went into lockdown, there was something…almost unreal about what happened for those first weeks.
Privileged, I know
We weren’t badly affected by the furlough, though my own buisness didn’t qualify for any help, most of my time was actually spent supporting my young adult children through the various challenges that the pandemic was raising for their mental health, mine and everything else.
We are a year on now, and though a lot has happened, I actually think that I’ve come out of this a lot less ‘scathed’ than others, I’m not sure that any of us will know normal again.
And I don’t really know how to explain it. What I do know is that life – in all its forms are fragile and it’s hard to talk about it in terms that we all relate to because I can’t think of anything that is remotely like this, not in my experience.
Whatever the ‘new normal’ is, I hope our PM understands that his cliched behaviour and almost childish soundbites aren’t helping. Sound and fury, signifying nothing.
When all you wanna do is pillow fort but you have to ‘adult’
I know this is an odd concept to raise for someone that’s a business owner and often works as hard as I do to advocate for others, who has raised two children to adulthood and when I think about it, survive what could be seen as serious negligence by my older psych team, but sometimes, do you wish you didn’t have to ‘adult?’
Adulting is overrated
I don’t mean by this that I don’t think I should have zero responsiblities. I’m just really tired of not getting ‘a win’ in the things that I do, not really. All of my planned treats, no matter how small, have either fallen through, or I’ve had to ask my partner to pay for them after all – which makes me feel bad. He doesn’t mind as much, but it’s a bit hard to talk to my kids about being adult and responsible then running to my other half and crying because life is hard.
And lately, I’ve been crying a lot.
I try not to focus on bullying, because it’s not a positive thing to think about and it gives them power, but often, I’m finding a lot of people when they are challenged on what they say, suddenly try turning the tables and creating the idea that they’re a victim. That you’re in the wrong.
Compound that by the fact that often, this is over hosting bills or whatnot, and you can see how it hurts me to have people treat me this way.
Reality…
Realistically, my company actually works, just about right now. I’ve got some work to do over the end of my Kaiatus to launch a few websites, but, we’re actually stable. Wire thin margins, but stable, so when someone starts complaining about their hosting bill, there is a bit of me that doesn’t want to engage. Another bit of me that knows I have to, because if I don’t, they’ll not pay. And a huge bit of me that’s wary, because I’ve been attacked recently for not considering giving away services free for the pandemic.
I only really manage what I do because I’ve kept beta accounts with places that aren’t as great as they could be and finding ways to fix the shortfall, or doing the stuff that I need manually. But realistically, I’ve been out of spoons and upset for about a week now.
The thing is…I can’t really pillow fort. Next week sees the start of my graded exposure to the outside world. In laymans terms, that means for the first time in five years, I’ll be leaving my house and going for a walk…and trying not to throw up when I do. It’ll either be brilliant, or I’ll make it brillaint, but today was a day where I could have just done with hiding away and not needing to deal with the world. If I manage it though, Prime Day reward will be nice. I never get anything extravegant, but….treating myself to some new books for Uni or some additional research tools would be nice (cybersec isn’t a ‘cheap’ study area, Forensic linguistics even less, and honestly? I’m lucky. I’ve got access to stuff through my partner and friends). If not there, Humble Bundle always has cool books on AI.
See…I can adult
When I start thinking like this, often, my friends point out that I pull myself out of it. I’m #blessed to get to do what I do. And, yes, I am. It doesn’t change though when nothing is going right and no one wants to do as they’re supposed to, and you need the books before the end of the month, or you’re looking forward to a tiny treat that keeps getting postponed, that you feel this way. It’s still not the ‘correct’ way to think, but….rewards are sometimes good. When applied sensibly. I can’t do it any other way. And for those of you pointing out ‘I can ask…’ I can. You’re right. Lucky me again, but….why should my partner bail me out when I’ve planned and it should work?
Like I said, I don’t like adulting. At all. 42 years old and I wish I didn’t need to. I’m just so tired of everything being uphill.
And don’t ask me about books. Still waiting for my 100 ISBNs…
On the road again…
Well, I’ve kinda posted about it over on BooksbyKai, but, as most people that read this blog know me pretty well (I think), I’m pretty sure everyone knows that this month (mid-May to sometime in June) is referred to as #Kaiatus. Bad pun, I know, but I’m the person that runs Kailarks, so I’m sorry, but only a little.
Anyway, #Kaiatus. I take time off over May, in part because May is a pretty busy month. We start with our anniversary (well, the 29th April really, and that’s our handfasting), then we’re usually prepping to go to Games Day (The UK Games Expo really), and celebrate my daughter’s birthday, plus May tends to be when I do my spring cleaning. Don’t know why, I just do.
This year, I stayed around until a few days ago, because…well, we celebrated our handfasting, and then I had another professional milestone. 10 years ago, I self-pubished a few short stories on what we now consider to be mainstream platforms (my first self-pubbed book goes back to around 03/04, where I sold PDFs of my poetry from my blog/bi-polarbears. Yes, this blog. THIS blog is 17 in July. Bi-polarbears was 18 in March. It gets better…the Livejournal and disorganised site I kept that was basically this blog beforehand, dates back officially to 02, and earlier if you count the baby HTML sites I buit. Ahem.)
Anyway, alongside that anniversary, my publishversary, I mean, one of the major projects I helped to found, and still work as an admin and the webmistress/managing editor for is also 10. I don’t think one would have happened without the other. That group is the Indie Author Group. 馃檪
But now…
Well, now, I’m travelling home for a week. This will be the first time I’ve travelled, really, since last September/October, but, more importantly than that, it’s the first time I’ll have seen our family since Christmas 2019. We never got to travel when lockdown was loosened, Christmas 2020 was just a clusterf*ck for so many reasons (I had shingles, the youngest needed to self-isolate for CV19 contact, and to protect as many people as possible, the rules kept changing to the point we just couldn’t go home. Which I bitterly regret, as we lost my gran in February.)
So, that’s part of why we’re going home. Another part is none of us have done anything remotely ‘holiday’ since….well, before Christmas 2019. Christmas 2019, I was kinda distracted with my son’s health and getting him to a place where we could support him. Tempus and I did go on a small trip late 2020, but it was his work and I was too sick to be left alone. Go me?
So…home?
Home, for those that haven’t been around for long, is Edinburgh. Shockingly, the gaelic speaking girlie comes from Scotland (anyone that’s seen my videoes will not be surprised. I have a recognisaibly Scottish accent). So that’s where we’re going. If I’m lucky, I might get to go get some reference photos for a book I want to write, but, if I don’t, the place I want photos of is easy to get to when were in Edinburgh, so it’ll keep.
Mostly, I’ll be spending time with family, and, as I do when we travel (it’s a six+ hour drive), I’ll think, and do some planning. I’ve got a ‘Legendary’ Planner, which I’m going to be trying out. And I’ll be doing some decluttering and house re-org, planning books, and getting ready to do some study for Uni. AND reading some books that I’ve been putting off for a while.
In short, I’ll be ‘off’. Buuuut…blogging more 馃檪
First though, home. I’ll be sharing in real time on my Instagram, and I’ll do roundups as I can. Be good without me 馃槈
The featured image? Well, one is me working while I go, the other?
That would be a view of Edinburgh, with an inconvenient lamppost.
A day in the disordered #atozchallenge
(again, as this is backdated, I’m writing this with the benefit of hindsight).
I did actually have this rather neat post about ‘a day in the life’, but, the last few days led to a bit of an epiphany.
You know there’s an Instagram bubble? I think when we write ‘days in the life’ that we sometimes make ‘blog bubbles’. So, instead of talking about what my ideal day should look like, and what it does when I’ve planned it out, I’m going to write about what my day actually is. And for the first time, I’m even going to include some of the mental health stuff I deal with – so this post could be mildly triggering.
I’ll be possibly alluding to self-harm, definitely talking about psychosis and depression and anxiety and insomnia. And I have a favor to ask at the end of this post.
A day in the disordered
I fell asleep at 11:30pm – a year of training and working with an app called Headspace and other meditation apps (honourable mentions to Digipill and Let’s Mediate (I have them on Android, they may exist on iOs), alongside my partner, which is now 80% of how my sleep works out.
Unfortunately, about 1:30am, I wake up again. I wake up to a voice, that I always hear. She’s my constant companion, and she’s very hurtful. If I’m lucky, I take a sip of water, I go to sleep again, and I might get to stay there for a bit. Most nights lately though, I’ve been waking up and finally falling asleep again at 5am.
The advice is, of course, if you’re not able to sleep in bed, to get up. But if I do that and she starts causing trouble for me. At her worst, she can trap me in the smallest rooms in the house. She’s the reason that I can’t get out of the house alone. She’s the thing I’m fighting back with my favor, but we’ll get there.
If I don’t get to sleep until 5 or 6am, I’ll either stay asleep till 8am, or 11am, or sometimes, I’m asleep till 2pm. And because of that, my day is always harder to plan for. How do I plan to be up at 9am, and exercised and ready to work, if I’m not getting to sleep until 6am? The answer is I don’t.
Insomnia is a difficult and hard to live with disorder – couple it with anxiety and psychosis, and though meditation helps, I’m frequently operating in arrears of sleep.
And that’s why I can’t talk about a day in my life. I have half an hour when I wake up that’s a set routine (get up, unplug and box tech coming downstairs with me, plug in anything, such as my Bluetooth headphones or spare batteries that need charged, wash face, rarely moisturise (I’ll be talking about that in S for skin routine, cause apparently, I’m annoying as all hell about that), meditate for ten minutes after making the bed, then come down. At night, I either go up before Tempus and grab a bath, then make my juice/waterbottle for my bedside, plug everything in, brush my teeth, get my Bluetooth headphones connected so that I can meditate, set up the book we’re listening to on Audible. Depending on how I feel then, I either read for 20 minutes, then meditate, or lately, I’ve just meditated, and used a sleepscape to go to sleep to. And then wake up again at 1:30am.
I can’t talk about this really here, but there is going to be an I for Insomnia over on bi-polarbears (the link won’t work until the post goes live 馃檪 )
And that brings me to a favor…
As many of you may or may not know, I’m an author. My major project this year is to talk about the fact that I live with a pretty severe (though not the worst, by a long shot) psychosis. I think I’m probably at the end of the ‘living in the community level of it,’ though, she’s quite hard to deal with. As an author too, it becomes difficult. I ‘hear’ my characters, and I don’t like that I hear and see things as well as part of my mental health.
On my birthday, I’ll be releasing a collection of mental health books. I’m not putting up the pre-orders yet, but I am asking people to subscribe to my newsletter, so I can start talking about the run-up to releasing them.
There may be a Patreon, there may not.
What I want to do though, is to remove some stigma surrounding both hearing voices and other psychosis, but I also want to acknowledge that authors do hear voices, and that *is not* as far as I’m concerned, is a psychosis. But I guess that’s between you and your healthcare team.
What I do know is that she’s stolen five years of my life. I’ll never get them back, and while I’ve done some things in there, I’ve not gotten everything that I wanted to do, done. There are other things, of course, that got in the way, it’s not just been mental health, but if I can remove from the whole concept of ‘we don’t talk about this, we’ll get into trouble’, then I will.
And I hope you’ll help me.
If you’d like to, ALL I need you to do is to sign up for my newsletter and join my mental health street team. That’s it. If you also want to share this post or the post about the project, I’d be delighted.
I’ll be talking about about this at P for Psychosis, because it’s important to me. Here, and at Bi-polarbears. I’ve avoided telling people I have issues such as psychosis for so many years, that it’s a bit uncomfortable for me, but I also know I’m in a good community, that accepts me for who I am, and knows me as I am, psychosis or otherwise. I hope to help others like me – because I think in the coming years, as we come out of lockdowns and the shadows of what we did to deal with the pandemic, that mental health is going to be a major issue – more major than even now, and I want to help people that need help. So I am.
C is for Can do #atozchallenge
(backdated, sorry I was late! It does mean I get to use pretty photos I got on Sunday though!)
Do or do not. There is no try.
Yoda, “The Empire Strikes Back”
Well, sort of.
I’m actually more of the ‘if at first you don’t succeed, try, try again,” which is another truism I believe in.
But, when it comes to my mental health, I can’t make excuses. I have to keep healthy boundaries, and work hard. There is no ‘try’ at living after all.
But it’s not easy…
The thing about trying to have a ‘can do’ attitude, in the context that I use it, is that it’s almost always about protecting myself. And it’s all about protecting, I guess, the spoons that I have. (In case you’re not sure what the spoon theory is, here’s the woman that wrote the base idea, and I am republishing my spoonie’s guide soon). ANd not always having the energy to do something is not the same as ‘there is no try’, and I think that’s the mistake many people make about what I mean.
If I can’t do something, I’ll wait. Unless I have no choice.
Lately though…
One of the things I started noticing about a year and a half ago, when I started having a few of the things explained to me that made no sense in my life while asking questions and hitting issues with my therapy, that I’m very much of the mindset that (probably unfairly) that if I say no, that my friends won’t like me. I’m very much a people pleaser, to the point that I often do things I shouldn’t. And it’s gotten me into a really difficult pattern to break.
So, my ‘do or do not’ is a complete sentence now. I will do, or I won’t. There’s no emotion attached to it if I can’t do the things I’ve had asked of me. I might feel guilty about saying no, but I can’t always do everything I want to (and as I’m actually writing this on my E day, I’ve already talked about planning fails, I know this). And if they don’t like it, I guess that means my friends aren’t actually my friends. And that might make me sad, but I’ve got to accept that. Luckily, it means that I’ll be ok.
A for ‘are we there yet?’ #atozchallenge
Late start to the AtoZ I know, but I’ve had work and other stuff to deal with today.
I think the title of this might give you an insight into me, more than anything else. I’m not… exactly … a patient person. I love to know where we’re going, what we’re doing, and be there.
I do not do well with waits. Waiting is anathema to me in fact. My impatience is so bad that I’ve actually made up games just to get through hard meetings. I think part of it is because I’m anxious (which I’ll mention later), but part of it is just that I can’t stand being still. Even for a minute. And I hate that my body lets me down so that very often, even if I don’t want to be, I am.
A also really stands for a couple of other things.
I’m an animal lover – I have two cats, and would adopt more if allowed. I want a dog, though, practically, I’m not allowed them. I’m also anxious. If you want a bit of background on that, I talked a little and will talk more about it on my mental health blog, bi-polarbears. Anxiety does, however rule my life.
I’m also also, an author. That, I’ll be showing off on both fiction.bykai and booksbykai. Writing is life for me. As evidenced by the fact that I’ve linked to *all* of the AtoZ blog posts I’m doing this month by mentioning I’m also sharing an AtoZ with a friend, and my post today was American Gods. An amazing book.
With all that awesome ‘all about me’ A entry, I think I’ll close with adieu 馃槈
(because I’m not sleeping and I’m a goofball).
(later in the month I’ll just link back to each post ;))
Tell me something beginning with A about you?
The radical changes I need to make #Mondayblogs #Wedswriters
So, I was a bit quiet about it, but I went on holiday for two weeks in the middle of August. 聽I spent the last two weeks battering around a pile of theme parks – Disney, Universal, Blizzard Beach (One of Disney’s waterparks), plus Nasa, Gatorland, the Florida Mall, Denny’s, IHOP… we did so much that I’m spending so much time just exploring my experiences and filing them away carefully. 聽My memory being what it is, I’ve also got about a gazillion photos that we all took – me, David, his mom, his sister, the kids.
I’ll talk about that more in another post (because this blog is getting picked up again as my ‘personal’ place to talk stuff, aren’t y’all lucky), but I need to touch on something I realised while I was away. 聽I am doing far too much. 聽FAR too much. 聽There’s no room for me to learn and explore my world, and there’s no room for writing, none at all.
So, you might say ‘but you knew this already Kai, this isn’t a surprise’. 聽And you’re right. 聽But between barely holding it together to grief, and to sleep deprivation (I sleep six hours a night, on my best night. 聽Normal nights are closer to five hours clawed back, with melatonin and other meds), so my little brain needs to be taught the hard way.
And the hard way was basically taking me offline for most of two weeks. 聽My phone doesn’t do roaming and I decided, early on, that I wouldn’t use the wi-fi, so I basically read, spent a lot of time hanging out with my kids (my son and I played pool a lot) and just enjoying *being*.
Now, my being is books and writing, so I spent a lot of time trying to work out what I should do with myself. 聽I don’t read or write nearly enough, and just behind that, I’m not doing a day of learning that I promised myself. 聽So there’s all that. 聽Behind that, and not far behind that either, I have a business to run – hosting and apps as it happens, and a diary I designed to help with all of this stuff. 聽I know it works because I hit the ground running when I came back.
I know it sounds like I’m happy with all of this, but I’m not. 聽It’s one of the most important things in my world- the ability to get to the point where I am comfortable and happy and can work with what I’d like to do, and I’ve lost that.
I’ll get there, but I’m sure it’s going to be bumpy for the next few weeks. 聽I’m happy to get with it, but there are things that are important to me, lost in the shuffle. 聽 And all it took was a two-week holiday to spot it.
My mental health is still deteriorating, but I think I know how to sort that out too – I just need a bit of space to do it. 聽Space isn’t easy to come by though, so while I do, I need to make sure I’m holding up my end of other stuff too.
But there is a ray of hope. 聽Writing and my books. 聽While this is a personal blog, the pro stuff will appear here too. 聽One thing I did learn while I was away was that while my heart is full helping others, my soul sings for words. 聽And I have so many stories to tell. 聽And I want to tell them.