This is one of my harder blogposts to write, because though I talk – a lot – about the impact my mental health has on my day to day life, and has done for a while, I’m pretty sure that this is the bit no one really understands, causes the most…misunderstanding and I hope, because I wouldn’t wish it on anyone, they can’t relate to. If you didn’t know that psychosis was a feature of my mental health diagnosis, or didn’t understand if you’d heard it mentioned before now, please…don’t start changing your opinion of me. That’s the biggest reason those of us with serious mental health issues aren’t as open as society needs. Because we lose people.
It was so hard to write in fact, that I didn’t, for a day. So, you’re not imagining it, this post went up a day late.
Sensitive child, with imaginary friends
I wish I could say that I know things would have been different now versus 30+ years ago, when I was growing up, but I’ll add this disclaimer to the beginning of the post. Currently, the mental health crisis, and in fact, the whole NHS service crisis, caused by politicians, is going to result in more young people growing up in various states like I did. My family did their best, and a lot of what I now know to be ‘just not right’ was ascribed to me being a sensitive, empathic child with a high intelligence. While I’m not saying that’s not true, I do feel that the fact that I wasn’t caught as autistic, or having issues with sensory processing, or possibly even ADHD as a child and teen says a lot about how the school system is ill-equipped, in a standard setting, to recognise that intelligence and mental health ‘quirks’ don’t always go hand in hand. I have a very high IQ, but, here I am, at 44, and I basically live a life that is safe for me thanks to my partner. I’m not saying it’s not because I can’t work, because I can and I do, but…I’ve had to build a job around my health, and right now, I’m at a bottleneck and don’t like it.
I grew up on a ‘working class’ estate (in quotes, cause I hate the terminology) in Edinburgh. By the time I sat my Highers, I was really struggling with my mental health, and it was basically ignored by the school. Hindsight being what it is, I was already becoming isolated and a bit insular, but I wasn’t the most popular girl in school, and was in fact bullied for most of my life, and…along with other incidents, the things I took comfort in – everything in my imagination – began to twist.
I’ve always seen and heard things. Always. But as an adult, those things became more violent, and more inward aimed.
Her
I’ve addressed this a few times on Facebook, but…I hear and see one specific person. When I’m having a really bad day, she can distract me enough that she can convince me the house is on fire, or that people are coming for me with knives. But even on my ‘good’ or ‘neutral’ days, she’s there. She’s shouting at me now, for writing this, reminding me that I’m in a house on my own and that I’m on the top floor, and anything could happen. She…she’s always been there. Always. Whether she’s a manifestation of the things I think about myself, or something else is pretty much up for debate, but…I’ve never known a time that I can’t hear and see her. I’ve tried antipsychotics, and they don’t get rid of her, they just dull down the constant anxiety I live with (and hadn’t actually realised wasn’t supposed to be there until I asked after a trial on meds), so I find it easier to maintain a facade of not listening, and not reacting.
It’s hardest in situations where I’m either not in control, or there’s a lot of noise – especially loud noise – and motion around me. Which is why, I think, even my GP is surprised that I like LudoSport so much. And I’ve noticed that my best days are when I’m focussed on Petrichor (other post today, she’s my blade), and just doing what I’m told, rather than trying to keep track of everything and everyone. My BEST days are when I can wall her off for a bit, and do the things I love without fear. Tempus, my other half, supports me in finding those slots, but those days really are few and far between.
The best I can do to manage ‘her’ is to remember mindfulness, breathe, and try to ground myself.
No one knows unless I tell them – or they see me react
I think the most surprising thing about having any type of psychosis, even though it makes perfect sense if you think about it logically, is unless you tell someone, they don’t know. But… I’m going to explain why it’s surprising from, well from my point of view. Maybe others that live with similar (and again, I hope you don’t, it’s horrible, wouldn’t wish it on my worst enemy) will agree, but if you live with psychosis for long enough, it’s normal to think that it’s real. If you’re so used to it being real, it’s…surprising that no one realises that you’re reacting to that, not something else. So, I understand why people are surprised when I talk about psychosis in such…steady and measured terms, but I still marvel at the idea that I’m the only one that actually sees her. That no one knows unless I let on.
And that’s the biggest issue with psychosis, after the physical and mental effect it has on those of us with it.
I bet, if you didn’t know about what I deal with, you see me a little differently now. And that’s ok – we always change how we see, and feel and think of people. But…I know that people will always wonder if I’m so unstable that I’ll hurt them – or others. Because that’s how people with a psychosis are portrayed. Whether it’s a component of schizophrenia and those cluster of diseases, or standalone, like mine (well, not really, I have CPTSD, Anxiety and other issues), I know that people see me as the media portrays psychosis.
It’s why I wrote run girl run. That’s a shared ‘R’ on Friday, because that’s my big news this year.
Like any other mental health issue though, instead of believing what pop culture portrays, think about me when you hear ‘psychosis’. If you didn’t know about it before this post, think about what you thought of me back then – I’m sure ‘funny’, ‘intelligent’ and ‘caring’ featured in there somewhere. That’s far more important than my mental health issues, because I still am. It’s important – and stigma breaking – to remember that label just means that I need extra help sometimes, that I’ve got an underlying reason for being a bit nervous of certain things, and that I’m no different from the Kai you knew going into this post.
Kai is a writer, author and avid reader. A mental health advocate, Ludosport athlete and coder. She’s the mother of two young adults, owned by two cats, and lives with her beloved in the Cotswolds.
I guess, as I’ve spent the last month planning everything, that I didn’t realise how serendipitous this week would actually work out.
Yesterday, I was lucky enough to spend a few hours just…soaking in the natural beauty in an arboretum called Batsford. Batsford Arboretum is one of those places that I’ve been, again and again, to relax. When I lived in Edinburgh, I wasn’t far from trees, water, nature (Colinton Dell), so when we moved, it was kinda hard for me, because though we still lived on the outskirts of towns, it wasn’t as easy to get to places as it was. I do have my front yard, and back garden now, but it’s been difficult to really get at the pretty, nature based things I love.
Recharge, reset, renew
I use my time in nature as a recharge, a reset and a renewal. I love trees and greenery (I’m lucky too now, that my office has a little space for greenery. I’ve got a bonsai tree and a hydroponic plant above my main writing shelf, and it’s just the best thing in the world to look at. When I’m really struggling too, my partner often takes me into a park or out to a place where I can just spend time surrounded by trees and other stuff. And, we’ve got four ‘go to’ places that we really love around there. Crickely Hill, which is a park nearby, Robinswood Hill, which is also nearby. We also love to go to two local Arboretums – Batsford and Westonbirt. And we spend *a lot* of time there.
So, yesterday, my daughter needed photos for her college work, and I spent the afternoon just…enjoying the blossom trees, and the magnolias. I’ve got some photos, I thought I’d share them today 🙂
First, the magnolia tree we found. It’s not one I’d ever seen before, with the branches growing straight up. It’s gorgeous.
Super slowmo chill
One of the things I’ve taken this time is some super slow videos of the waterfalls too.
What do you think? Peace, quiet, tranquility and a lot to see this spring 🙂
Kai is a writer, author and avid reader. A mental health advocate, Ludosport athlete and coder. She’s the mother of two young adults, owned by two cats, and lives with her beloved in the Cotswolds.
I’ve spent the last few months trying to work out what I’m going to do with myself. I’m not sure if I mentioned it, but the plan at the beginning of the year was to release 52 books this year. And when I said it, I was sincere, and I still am. But, had I known then what I know now….
I might have set the bar a little bit lower.
I wanted though to touch base. It’s been a busy first couple of months, and I’ve got several pieces of news. Firstly, the books are on track. I’ve got several draft books that I’ll be working on the proof copies of each. I’ve currently got three proof books to work through, all of which so I can release them as paperbacks. I’ve also finished Run Girl, Run, as a book, so will be establishing the site really soon and doing occasional updates there too. That site really is going to be designed around how I’m rebuilding my health ad life to manage my mental health, with the help of my hobbies and some other stuff. I want to talk about everything that goes into prepping for that book too.
Beyond that, I’m looking forward to everything that I’m working on and writing – mostly because I’ve got my new writing space! I shared a video on my Facebook, which I’ve attached here, but I’ll be setting more and more up – we’re talking about getting some bonsai trees for the desk for me too, so that’s going to be wonderful.
My new office!
Books coming up
So, I’m excited to announce the next set of books that I’ve got coming out. These aren’t all of them, and the backlist books aren’t a specific date.
Backlist
Memento Mori – proofing
Glass block – print proofing
10 hour Marketing Plan – proofing
12×12 – free book, social media support tutorials.
The Vivarium – a free story set in Darkness PD
Existence Oblivion
Releases
A House at War has been postponed
Starfall’s Edge – by the end of the month
The Endless lake (Starfall’s Edge book 2) March 13th
Of all the books though, I’ve already got Cry Havoc up and out. If it’s not linked, please check out BooksbyKai, there will be news on there, or the newsletter.
Alongside all of this, I’m studying, I’m improving my my mindset and more. But with the new space I have, I think I can do it all. I know I can. I’ll still be hosting and working on formatting and more still, but I’m slowly shifting to doing more stuff.
And then there’s the new stuff.
I’ve been asked to really focus on some stuff that I wanted to do, or I’ve been challenged to do. So I’ll be writing about that next, on Thursday, on BooksbyKai. BooksbyKai is also where AuthorInterrupted now lives, so if you’ve been looking for those old posts recently, it’s there.
Kai is a writer, author and avid reader. A mental health advocate, Ludosport athlete and coder. She’s the mother of two young adults, owned by two cats, and lives with her beloved in the Cotswolds.
I kinda feel like I’m watching a flashing cursor sometimes right now. As I said in my last post though, Tempus is talking about giving me space to do something to make me happy. And honestly? it’s been a bit of a shock. And a bit of a weird thing to start organizing.
And it’s a LOT like starting at a blinking cursor. A blank document. But it’s full of hope, if I’m honest. Blank is scary, but blank also means endless – or nearly endless – possibilities.
First tentative steps
I’m not stepping away completely from my business – after all, I’ve run a hosting company and written before. I’m also not stopping formatting books, as it makes no sense to. But I am stopping the plans I had for coaching and teaching. I’ll be running a 30 day writing challenge from the 30th September, and I’m looking at what I can do to write and set myself up.
It’s not easy choices, if I’m honest – so this week really is about consolidating and working out what to do. Pivoting back to writing isn’t as easy as going ‘yus, writing time!’. I’ve still got commitments to clients, but I don’t think I’ll be taking on new ones for a while. I want to take this opportunity – it would be entirely ungrateful to do otherwise.
Rebooting…
I do very much feel like I’m rebooting my computer inside my head though. And maybe even doing a little bit of a clean install – removing some of the stuff I don’t need right now. It isn’t the easiest of things, if I’m honest, but, I am really lucky. I’ve got this opportunity, and I don’t want to waste it. I am, thinking hard, in short.
So…what do you guys think? What should I do? I’m looking at books and trying to decide what to write, but for now, I’ll be working on my backlist and thinking.
Kai is a writer, author and avid reader. A mental health advocate, Ludosport athlete and coder. She’s the mother of two young adults, owned by two cats, and lives with her beloved in the Cotswolds.
I’m in a bit of an odd, vulnerable place right not. And it’s been going on for about three months. Because I literally started writing this post in June of this year. And stopped.
Everything.
Broken, busted…
I don’t know how to put into words how hard the last few months have been, if I’m honest. It’s been a rollercoaster of trying to work out what to do and how to do it, and if I’m entirely honest, it’s been painful and unpleasant and just not fun. A lot of it too has to do with stuff not really in my control. I am disabled and care for someone disabled, and the last few years have seen that ‘commitment’ as it were, rise and rise. The more time I put into getting better, it seems the more time I need.
In June, things really started to slip. I wasn’t in a fully regular routine and with summer just around the corner, all my grand plans for getting help and getting stuff done(TM) were shattered when various things happened. Fast forward three months, last week, and everything just… collapsed in a spectacular fashion.
There is a light at the end of that tunnel
This week, we’ve had a house full of sick people – my beloved caught Covid (he dodged it, somehow when we had it, but we think we picked it up at Alton Towers as a few days after our day there, he was so ill that, completely unlike him, he took to bed for most of the day from Saturday till this morning. He’s much better now, to my intense relief), and we’re slowly sliding back into a routine of sorts. But on Tuesday, after he’d thought about stuff I’d been saying I guess, he told me that he wants me to just focus on writing for a bit. To stop trying to fight against ‘the tide’ because though I was trying something big and bold, the public encouragement was there, but in private, more people wanted ‘a free slot if everyone else was paying’ than the people actually choosing to engage with the plans themselves. Months of work on designing a coaching project aside, the discouragement I felt – and if I’m honest still feel – became so palpable, that I … I spiraled completely.
My beloved to the rescue…!
Tuesday night, I’d had a rough day (plague house, shingles break out for me, cold-sores starting, the works), and I went up to bed and I said to him ‘I can’t do it’ and he said ‘k. Tell me what’s in your way?’ And I told him. About how people want to do it but don’t seem to be signing up, about how it feels like the wrong time to be asking people to commit to coaching in this environment, how most of all, it’s not easy to teach people mindfulness, abundance and accountability when I’m not a reflection of it myself. He went very quiet and said.
“I think it’s because you’re not writing. How about you stop and do that for a bit.” I told him that the business wouldn’t survive if I didn’t get this to work, and he said “We’ll make it work. Trust me.” And that was it.
I’m not saying it’s not going to be painful, but, he’s right. I wished for a way to afford to write again, and it’s not the one I’d have chosen, but I am grateful that he’s willing to back me until I’ve got that bit of my life square again.
It’s still taken a couple of days to write this. I’m still dealing with a shame spiral I CANNOT fathom, because I feel like, once again, I’m letting people down. But at the same time, I’m actually willing to look at my laptop again. I’m sad because I won’t get to earn my Remarkable the way I wanted to, but…I don’t need one to write. There’s a lightness of heart to go with the ‘oh, I don’t like this’ failure feeling.
So….yeah…that’s been my last three months. What about you guys?
(actually, one notable exception. Ludosport. I’ll talk about that next blog post).
Kai is a writer, author and avid reader. A mental health advocate, Ludosport athlete and coder. She’s the mother of two young adults, owned by two cats, and lives with her beloved in the Cotswolds.
21 years ago today, I was in intensive care. Concious, and actually, in good shape, just waiting for a transfusion. My daughter – who is also 21 today – had been delivered an hour or two before – and they’d nicked her placenta, and that created quite a serious bleed for me. I apparently lost over a litre of blood. Probably a good thing I was distracted with the baby girl I’d just had, huh?
21 years on though, I have a beautiful daughter, an amazing son, a good life. A great one in fact. But I still struggling sometimes. and lately, it’s been one of those periods of painful growth.
I’ve got a heart of glass
It’s often said in fact, I’m ‘soft’. I’ll give in easily when people ask me for things, though it’s very much a CPTSD/people pleasing thing. It is in fact why they’ve asked me to write a book about it. People pleasing is a major problem with people with most mental health issues, IMO, but I guess one of the issues I have with people pleasing is when you don’t keep doing it, others turn you into the bully, the villain. In my experience, instead of being thanked for supporting people as far as I have, I’m the ‘bad guy’ because they feel they can’t do what they want to do, but don’t want to acknowledge that they’re getting the help. And after a while, it leaves you feeling like saying no will leave you with a heart in shards, when they get upset about it and ‘fight back’.
The thing is, I’ve also got a really thick skin too – for criticism at least of my professional work. It’s an odd thing to think about, I guess, but it’s important to bear in mind that people like me – that work with other creatives, and support them as best they can – that give to the community – when they’re criticized for not continuing to do so because their boundaries are really difficult to work with and ensure that things are…stable, safe. And when referring to safe with boundaries, it’s something really important. Because honestly? We don’t handle boundaries well when we people please. And for me at least, it means my heart ‘breaks’ but bounces back of my thick skin, so the only person that really gets hurt…in my experience anyway…is me.
And that’s completely at odds with my ‘gratitude attitude’ (I’ll explain why I hate that one later) and trying to be happy and settled and….good. I wonder if anyone has any thoughts (kind ones please, I’ve got enough wounds right now, mostly self-inflicted. Right now, it’s holding course, it’s remembering that this is hard to deal with, that it’s NOT ME if I really need to fix my boundaries.
Kai is a writer, author and avid reader. A mental health advocate, Ludosport athlete and coder. She’s the mother of two young adults, owned by two cats, and lives with her beloved in the Cotswolds.
Kai is a writer, author and avid reader. A mental health advocate, Ludosport athlete and coder. She’s the mother of two young adults, owned by two cats, and lives with her beloved in the Cotswolds.
That sounds like so much fun! I love games, especially RPG. Haven't played with a group in a few years.…